There are two reasons why people don’t talk about things; either it doesn’t mean anything to them, or it means everything.
Accepting your illness as a part of you is not giving up; it is merely learning to love the hardest part of yourself to love, and that is true strength.
by jessie roth
all i ever really want to know is how other people are making it through life—where do they put their body, hour by hour, and how do they cope inside of it.
Illustration for an article from Therapy Today about how chronic illness can lead to mental health issues. Mind and body need to be treated with a holistic approach, with therapists and doctors working together, to help people suffering with chronic illness.
I know you won’t all read this but here’s a Few of my favourite pictures of my brothers. There’s just the three of us and I’m obviously the oldest.
I’m gonna answer some questions that have come up a lot about them on my asks and I love that cos I rather people ask than stare. So thanks for the curiosity but also the respect. Ok, so they were born just under four months early, if the hospital hadn’t of done this both my mum and the boys would’ve died. (Yes they are identical twins.) They lived in hospital from birth till they were three and we weren’t allowed to hold them till they were 6 months old. We weren’t allowed to live with them but my mum went every day all day while I was at school and dad took me there from school everyday so we would stay a family no matter what. They’re both blind and one is deaf. They both have Noonans syndrome and another syndrome which hasn’t yet been named. They have a very short life expectancy, probably just to early teenage years. They’re mentally 6months old and it’s frustrating for them that they can’t walk to what they want or speak and tell us what hurts. They both have holes in their hearts and leaky valves, they also both have chronic lung disease so They can’t breath without their oxygen constantly rushing up their nose. Their bones in their legs and ankles aren’t strong enough to ever walk but the youngest out of the two can now stand as you can see and it’s the happiest I’ve ever seen him. Needless to say, we all cried.
Another question I need to answer is no, I haven’t accepted that I am going to lose my baby brothers. I shouldn’t have to and I almost refuse to but I’m trying to help them. I’m helping by being a fundraiser for their own charity T.W.I.N this year as they’re now too heavy to lift into bed, in wheelchairs etc ourselves and the government won’t help me and my mum. So far in 2014 I’m jumping out of a plane, doing the nuts challenge again and doing a dance performance. I’m also a volunteer with the British heart foundation and next summer I’m flying out to Florida for two months to work with Give Kids The World as they’ve both helped us so much.
I know everyone has their own problems. Some bigger than this, but these boys have had hell and I’ve never known two happier 11year old boys. If you have any more questions that’s totally cool but above anything else; They’re my inspiration and I love them with all my heart.
Too often, the only escape is sleep.
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A father devastated by loss turned to social media to help him grieve.
Last week, Reddit user Nathan Steffel posted a heartbreaking request on Reddit, a social network that allows people to submit and vote on content. He told the site that he recently lost his infant daughter Sophia, who lived just six weeks after battling hepatic hemangioma in her liver. According to the National Institutes of Health, hepatic hemangioma is the most common type of liver tumor not caused by cancer.
“My daughter recently passed away after a long battle in the children’s hospital. Since she was in the hospital her whole life, we never were able to get a photo without all her tubes. Can someone remove the tubes from this photo?” Steffel wrote.
He received an enormous response from users willing to help him with his request, as well as from grieving parents. Some users submitted photoshopped images, while others submitted pencil sketches and even oil paintings.
A message board conversation reveals Nathan and his wife knew of their daughter’s condition from an early ultrasound but did not know how bad it would get.
“I just wanted to reach out to get at least one quality picture. I was amazed how many people responded. We have so many nice pictures now.” Steffel told BuzzFeed.
Sometimes people on the internet do incredibly kind things for total strangers.
Isfahan, Iran. Photo by Kazuyoshi Nomachi.